Conversations about Lyme Disease with Sufferers and Lyme Experts
Jenna Luche-Thayer, author of $Lyme: How medical Codes Mortally Wound Corruption & Scientific Fraud Available from Amazon £9.97 (Translated into French, German and soon available in Spanish and Swedish) Kindle Edition: £3.49
The ICD codes stand for International Classification of Diseases. The Lyme ICD codes had not been updated for 25 years and were defined very narrowly. Jenna and her 'Ad Hoc Committee' managed to increase the number of complications associated with Lyme Disease; for example, dementia, Lyme carditis and the central nervous system. All of which are potentially fatal.
The new codes will be brought in on January 1st, 2022, so patients now have a much higher chance of having their care covered because their condition is recognized.
She recommends that patients copy and print out the new codes from the World Health Organisation's website to show their Doctors.
Jenna says that the case definition for Post Treatment Lyme Disease Syndrome is "medical fiction", because there is no medical or scientific proof of PTLDS, yet it is being promoted widely and scientists with vested interests are using this terminology to gain research funding. 100's of millions, if not a billion, has been spent on researching the Lyme pathogen and PTLDS, yet very little has been spent on improving treatments or finding a cure for Lyme Disease.
She says that people have been denied diagnosis and treatment for so long because of corruption. In the US Government, officials in office and scientists can hold patents and therefore have a personal stake in what medications will be promoted and used. They can also sit on committees and eradicate their competition. For example, the patents for Lyme tests are held by some CDC (Centre for Diseases Control) officials - which aren't reliable "Patent corruption in the US is creating corruption globally- it's a huge problem."
Another form of corruption is the downplaying of the disease, there are a lot of Lyme patients in the US and other countries, instead of being given cheap medication to reduce Lyme infection they are put on extra expensive 'biologics' - which make the biggest profits for the Pharmaceutical Industry.
Jenna says, "if this is supposed to be such an inconsequential disease why have they spent so much time and effort promoting global guidelines and restrictions and the identification and treatment of it?"
Jenna has been able to research this disease because she first became ill with Lyme at 16 years old, but wasn't diagnosed until she was 52.