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Conversations about Lyme Disease with Sufferers and Lyme Experts
Episodes
Wednesday Jun 03, 2020
Wednesday Jun 03, 2020
Jenna Luche-Thayer was a senior advisor to the U.S. Government and United Nations. Discovering that the ICD codes for Lyme had not been revised for 25 years, she formed an 'Ad Hoc Committee' of experts to change the codes and include many other symptoms, previously not included. These Lyme Codes were ratified by the World Health Organisation and in 2022 on January 1st the new Lyme codes will be included in the global ICD11 system.
Jenna has recently published a book called $Lyme which exposes global fraud, corruption and human rights violations surrounding the Lyme Disease epidemic.
Comments (6)
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I want to get after I had Lyme disease. I just hate having it. Sincerely Ann Rayner
Thursday Feb 09, 2023
... I started iv Ceftriaxone pulsed and was feeling incredibly better. However, I wasn't able to continue those for a couple of reasons. It's been wearing off now and I feel horrible. Can't "think" . Everything I used to do is now incredibly difficult. I don't know what to do. Just wondered if you have any suggestions. Thank you 💚.
Monday Dec 14, 2020
Jenna, I just re read that the date for the new ICD & PROCEDURE codes is January 2022. Still, it's a huge victory. 💚 I wanted to ask your opinion about when the spirochetes flood up to your brain, which happened to me 4 years ago after I had an infected tooth extraction. I was doing really well after 3 years with my LLMD. He had said that my 2 co-infections were gone because the lab results were negative the last 3 times he tested. Although, my Lyme was coming back higher than usual. ....
Monday Dec 14, 2020
... I've learned so much the past 9 years living with Lyme Disease. I've met so many people who never saw a tick nor a rash and lived in agony - never knowing why. I've lived in agony although I knew why. I just never knew that there were LLMDs. I was alone without any help or support. So, my "blessing" was just frustration. I look forward to reading your book $Lyme. I am so proud of your work to get the ICD & procedure codes out. It's just around the corner to January 2021. Cont ...
Monday Dec 14, 2020
Jenna, I hope that the experience I had with my single tick bite (as I wrote earlier today for you) shares what you have been saying about the global corruption & human rights violation. I started out believing that I was "blessed" to have had "the gift" of knowing what a classic bullseye rash looked like & that I had felt the tick detach & roll down my back. Of course now I know that the CDC rule of recognizing Lyme Disease is only if a patient presents with a classic bullseye rash cont ...
Monday Dec 14, 2020
Thank you for all your support with Lyme Disease. How would you handle what happened to me; I went camping for a weekend. I came home to San Francisco and felt a tingling on my back then something rolled down my back I looked on my chair and saw an engorged bloody tick. I went to a mirror (Because I had seen one patient in the late 90's when I worked as a Medical Assistant for 5 Internal medicine doctors, who came in with the classic bullseye rash, my senior physician immediately said that it was a Lyme infected tick bite and prescribed antibiotics immediately) that's all I knew (and that without the antibiotics immediately I would become very ill) so I saw a huge bright classic bullseye rash with a bite mark in the middle) I went to an emergency department & the physician confirmed immediately that I had an infected tick bite and needed antibiotics immediately. however, he wouldn't prescribe any antibiotics for me. I persist and he said he wasn't allowed to. its been covered up by that hospital ever since. it took me 2 years to find a LLMD. I started symptoms at 2 weeks later my rash faded in 10 days. now it's almost 9 years later and I am not able to think or word find anymore. my LLMD found Rocky Mountain Spotted Fever and Babesia along with the Borellia. I just want to get better or die now.
Monday Dec 14, 2020
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